Pandemic restricting access to services for children with complex medical issues: UBC study

Parents of children with complex medical reduced their access to hospitals and schools

Black Press Media file photo

Black Press Media file photo

Families with children who have extremely complex or chronic medical conditions are struggling to find adequate support, according to the latest research by the UBC.

Children with chronic medical conditions have lost access to key services like physiotherapy or speech and language therapy, the August study found.

Physicians describe medically complex children as those who are born or become seriously ill soon after birth. They often require feeding tubes and ventilators, and are likely to be non-verbal. These children need care throughout their lives and require multiple specialists.

Research suggests that 30 per cent of the children’s parents avoided taking them to the emergency room in circumstances where they would normally have done so. From March until May, 60 per cent of the surveyed children stopped attending school. Parents were concerned over what their child might be exposed to.

The B.C. Ministry of Children and Family Development typically provides all medical equipment for children with a chronic illness. The ministry also provides co-payments for therapies, extra care to ensure the child’s parent can have a break, and allows support payments for licenced daycares.

Thirty-eight per cent of children’s parents were not able to access ministry supports to offset the impact of COVID-19 restrictions.

“The most surprising detail was from the B.C. ministry – most parents didn’t know about their support networks, or couldn’t access them even though they were advertised as key supports,” said lead researcher Jennifer Baumbusch.

“This had a huge impact on the parents’ physical and mental health.”


@janelle_swift
janelle.swift@castlegarnews.com

Like us on Facebook and follow us on Twitter.

Coronavirus

Just Posted

Surrey Mayor delivering “virtual” State of the City Address on Tuesday. (Screen shot)
Surrey Mayor says city is ‘earning accolades from near and far’

Doug McCallum delivered his second State of the City Address on Tuesday since being elected in 2018

North Surrey Sport and Ice Complex. (Photo: larkgroup.com)
North Surrey rink, Newton playground earn B.C. excellence awards

Awards presented by BC Recreation and Parks Association

Delta council began with an Indigenous land acknowledgement for the first time on Monday, May 10, 2021.
Delta council opens first meeting with Indigenous land acknowledgement

Acknowledgment will be read at the start of each council/committee meeting and City of Delta event

Surrey Fire Service battled a fire at an apartment building in Fleetwood late Friday night (May 14), near 84th Avenue and 160th Street. (Photo: Shane MacKichan)
Surrey firefighters collecting donations for people displaced by Fleetwood apartment fire

Fleetwood BIA, community association also band together for donations, help

A prowling coyote proved no match for a stray black cat who chased it out of a Port Moody parking lot Friday, May 14. (Twitter/Screen grab)
VIDEO: Cat who chases away coyote asked to join Port Moody, Vancouver police 

Caught on camera Friday, the black cat jumps out from under a parked car and runs the wild animal out of a vacant lot

A forest of dance-protesters outside the BC Legislature on April 11. These participants were doing the Dance for the Ancient Forest in support of the Fairy Creek blockade and against old-growth logging. (Zoë Ducklow/News Staff)
Arrests begin at Fairy Creek blockade on Vancouver Island

Five protesters arrested as RCMP begin to enforce injunction

A thunderstorm pictured in Fraser Valley in 2021. (Black Press Media/Jaimie Grafstrom)
Wildfire concerns sparked after 320+ lightning strikes blasted B.C. yesterday

Approximately one-quarter of the province is currently listed as being at moderate risk of fire

The Combined Forces Special Enforcement Unit released a poster Tuesday, May 18 featuring the names and photos of more suspects involved in the Lower Mainland gang conflict.
Police issue warning for 8 more men involved in Lower Mainland gang conflict

B.C.’s gang task force says it’s expecting ‘violence to continue and escalate’

A restaurant server on White Rock’s Marine Drive serves customers on a roadside patio. Indoor dining and recreational travel bans have been in effect since late March in B.C. (Peace Arch News)
B.C.’s COVID-19 infection rate falls to 411 cases Tuesday

360 people in hospital, up slightly, two more deaths

The Banff National Park entrance is shown in Banff, Alta., Tuesday, March 24, 2020. THE CANADIAN PRESS/Jeff McIntosh
Minister asks Canadians to camp carefully in national parks as season starts

Kitchen shelters in Banff National Park closed, trails on Vancouver Island will only be one-way

Names of those aboard the ship are seen at Komagata Maru monument in downtown Vancouver, on Tuesday, May 18, 2021. The City of Vancouver has issued an apology for its racist role in denying entry to 376 passengers aboard a ship that was forced to return to India over a century ago. Mayor Kennedy Stewart says discrimination by the city had “cruel effects” on the Sikhs, Hindus and Muslims aboard the Komagata Maru, which arrived in Burrard Inlet on May 23, 1914. THE CANADIAN PRESS/Darryl Dyck
Vancouver mayor says sorry for city’s role in turning away South Asians in 1914

Kennedy Stewart has declared May 23 as the annual Komagata Maru Day of Remembrance

A crew of WestCoast WILD Adventures employees tackled an onslaught of litter left at the ‘Locks of Love’ fence at Wally Creek on May 2. (Anne-Marie Gosselin photo)
Litter woes consume popular ‘Locks of Love’ fence on B.C.’s Pacific Rim

Popular view spot near Tofino plagued by people hanging masks and other unwanted garbage

Vincent Doumeizel, senior advisor at the United Nations Global Compact on Oceans, as well as director for the Food Programme for the Lloyd’s Register Foundation, pulls up some sugar kelp seaweed off the French coast in April 2020. He was the keynote speaker during the opening ceremony of the inaugural Seaweed Days Festival. (Vincent Doumeizel/Submitted)
Let’s hear it for seaweed: slimy, unsexy and the world’s greatest untapped food source

Experts talks emerging industry’s challenges and potential at Sidney inaugural Seawood Days Festival

Most Read